Tuesday, April 14, 2009
Tue. Morning Update
Kate did well overnight. Her swelling has gone down because she is draining fluid like crazy, so they are putting more back in to keep her blood pressure stable. It's still bouncing around a bit, but they said this happens sometimes.
She looks a bit more relaxed this morning, although she keeps trying to turn over onto her tummy. She normally sleeps on her tummy.
Last night someone put her hair in pigtails and she looks adorable. I can't say enough about the staff here. They are awesome! Dr. Bove came this morning, but I wasn't here yet. He is an amazing doctor--so incredibly humble for being so famous. He is known around the world but you'd never know it by talking to him. He is totally down to earth and has told us several times that he just doesn't know the answer to our questions.
One of those was: since she has one ventricle, and no pumping action in her heart, how does the blood get to her lungs?
He said he didn't know! He said they don't know how it works except to say that it ends up being a pulling action, rather than a pumping ac tion. So, it's more of a suction type of thing--her heart contracts (push) and when it relaxes, it PULLS the blood through the lungs. You would think this would be most inefficent, but it works. The doctor said none of them know WHY it works...they just know that it does.
Jeff just called and said that his mom and sister are going to fly here tomorrow to take care of our kids at home. I am beyond grateful!!!!! It will take a huge load off my mind.
I have been battling a sore throat the past few days, so if you wouldn't mind praying that I would not succomb to the cold that the kids had last week, I would be grateful. :)
I will update if there is any change. I think today will mostly be just trying to slowly wean Kate off of the equipment she is hooked up to. She is currently on a pacemaker because her heart is too swollen to beat normally (this is normal). Her machines and tubes are doing their job and we are very thankful.
Thank you for standing with us. It means more than you could know.