Wednesday, April 22, 2009
7:45PM - Update
Kate's little hand
Houston...we have poo-poo! I repeat...we have poo-poo! Hooray! I know it's gross to be so happy about poo, but poor Kate was in so much pain. She seems more comfortable now. Thank you, Jesus.
They switched most of her meds to oral today, rather than IV. Her central line is deteriorating and they want to be able to get it out. It would have come out today if there was any way to get an IV in a different spot. Due to past inability to get an IV started, they couldn't take the risk of having no IV access. So we have been being VERY careful with that IV!
Once the oral meds started to hit her stomach, she started throwing up. Poor baby!! Oh my goodness, she was the most pitiful sight. After three rounds of barfing, we all figured out that she was really sick to her stomach. They gave her some medicine for that and wow...what an improvement. She perked up enough to want to hold her balloon and a book. The book cart had come by and I got her one, thinking maybe later in the week she would want to read it. I got another little smile out of her when she saw it and she spent a few hours clutching it. Too cute!
Counting down Kate's Chest tube fluid output (so far today):
Right side 65cc's
Left side 39 cc's
A lot better than 90-100 cc's PER HOUR!! :) I just asked the nurse if the fontan kids normally go down each day on fluid output or if they fluctuate and she said they normally go down. So...let the countdown begin!
A vase of sunshine that was delivered today from a sweet friend!
She has eaten some Goldfish crackers today, so I'm hopeful that is the start of getting her to eat. Once she is eating, hopefully she will regain some strength. Big brother, Ryan, came up to sit with her tonight while I went downstairs to eat. We took her for a ride in a special stroller and she didn't like it at all. It was interesting getting all her tubes into the stroller with her.
I had to interrupt the writing of this post to hold Kate!! I looked up at her and she reached for me. I leaned in close and she put her arm around my neck. Be still my heart! Then she pushed my head back a bit and started stroking my hair, the same way I have been stroking hers the past few days. It was a moment. :) She continued to look into my eyes with all of the love in her heart just pouring out of her big brown eyes. I am so blessed to be her Mama.
Mama's heart feels better tonight to know that my Kate is showing some signs of being on the mend.
"I love you, Mommy."