Thursday, April 19, 2012

Mid-week catch up post

Once again, the week has slipped by without me firing off a single post.

I ended up staying an extra day in Colorado because my flight got so delayed that I would have ended up getting home at 2 or 3 in the morning. Thankfully, the airline switched me to a flight the next day. So I called Ryan to come back to the airport and get me--and was able to have another evening with him. Su-weet!

When I got home on Monday night, I noticed that Jordan had a bunch of goop oozing out of his incision area, along with a red line from the top of his cheek to his chin. I tried calling the surgeon but their phone system was down. Our pediatrician wouldn't touch him and said no one in the E.R. would touch him either. So Tuesday morning, I called again and the surgeon wanted us to come to Boston immediately.

No time to even start post-trip laundry. Or breathe. Once in Boston, it was determined that Jordan did not have an infection as we had feared but instead was having a reaction of some type. After getting the dried goop off his face and removing his stitches, the surgeon sent us to a dermatologist. Of course, the dermatologist is only at Children's three days a week and Tuesday was not one of them. So off we went to the town where she was practicing...20 miles away.

{Insert heavy sigh...}

She agreed with the surgeon--that it was a skin reaction and gave him some steriod cream. Apparently, the same thing happened a few weeks ago with another Asian patient who had ear reconstruction and now the surgeon is thinking of writing a paper on it. He and the dermatologist are now on a mission to figure out what caused the reaction to prevent any future problems with other children.

That means extra trips to Boston for skin testing. Oh the joy.

The following pic is a bit gross so if stuff like that bothers you, avert your eyes and skip over it.

At the doctor's office. Took some of the gang for moral support but in retrospect should have left them at home.
{insert another sigh...}
Let's just say, there was a very annoyed Mama and some extra assigned chores involved...

We made it home in time to do Kate's INR blood test and then off to the dentist with four of the kids. Whee!

I have been making twice a week trips to Boston and Springfield for Jordan, Zoey, and SaraGrace for numerous doctor appointments. Zoey is done going to Springfield for awhile, but now SaraGrace is going to be needing to go to Boston weekly for the next few weeks. Sadly, so does Jordan but his doctors aren't available the same days as SaraGrace's.

It's been a bit crazy around here for the last two months. We don't normally have this many doctor visits for weeks on end.

Although I would prefer not to drive to Boston twice a week, I am SO grateful that we have access to such awesome doctors only 90 min. away. And although we did not want to move here and be so far from family, we can see that God had a purpose in putting us here. Our kids needed these doctors.
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I know you are probably wondering about Ryan. I won't go into details but sadly, Ryan and Dani's marriage is ending. It's a very sad, painful situation. It was so good to see him and love on him a bit.

His surgery has not been rescheduled yet. He is having testing to see what is going on with his heart--if anything.

Pike's Peak

Kissing Camels at Garden of the Gods