Katie-bug and SaraGrace had their annual heart checks in Boston on Monday. Thankfully, all is well with their hearts. They both need monitoring to be sure that the surgical corrections are still functioning. SaraGrace is probably next on the docket for something to be done surgically (like a new valve) but so far, the valve they gave her at 18 months of age is holding its own. That could be in part due to her size.
However, her size is an issue. She hasn't grown for about a year. Or if she has grown, it has been less than half an inch. Hard to say with wiggly kids. So we are being sent to an endocrinologist to see what is up with her lack of growth. She eats fine but is so thin and small. Katie has almost caught up to her and is two years younger. They did a thyroid test and said it was normal. SaraGrace also still has night terrors pretty much every night and is often afraid to go to bed because she knows she will have a bad dream. We have an appointment at the sleep clinic next week to see if they can help her. She has had night terrors since we brought her home from China but we had hoped she would outgrow them.
So SaraGrace gets to have lots more Mommy time as we make those trips to Boston to see if they can help get her on the right track. Her cardiologist said, "I guess you didn't sign up for all this," and I thought to myself, "No, but I would walk on hot coals for this child so it's all good." And truly...all it takes to get some perspective is to walk the halls at Boston Children's and see parents with dying children. I am so grateful for the doctors we have. Our family doctor called me Sunday afternoon to make sure SaraGrace was okay--they had discovered she had strep after a test was done. Then last evening, Jordan's doctor called because he had just returned from vacation and wanted to make sure Jordan's skin had cleared up. Our kids' doctors are so dedicated...it's such a blessing!
