Wednesday, April 25, 2012

Kate And SaraGrace Annual Cardiology Visit

Katie-bug and SaraGrace had their annual heart checks in Boston on Monday.  Thankfully, all is well with their hearts.  They both need monitoring to be sure that the surgical corrections are still functioning.  SaraGrace is probably next on the docket for something to be done surgically (like a new valve) but so far, the valve they gave her at 18 months of age is holding its own.  That could be in part due to her size.

However, her size is an issue.  She hasn't grown for about a year.  Or if she has grown, it has been less than half an inch.  Hard to say with wiggly kids.  So we are being sent to an endocrinologist to see what is up with her lack of growth.  She eats fine but is so thin and small.  Katie has almost caught up to her and is two years younger.  They did a thyroid test and said it was normal.  SaraGrace also still has night terrors pretty much every night and is often afraid to go to bed because she knows she will have a bad dream.  We have an appointment at the sleep clinic next week to see if they can help her.  She has had night terrors since we brought her home from China but we had hoped she would outgrow them.

So SaraGrace gets to have lots more Mommy time as we make those trips to Boston to see if they can help get her on the right track.  Her cardiologist said, "I guess you didn't sign up for all this," and I thought to myself, "No, but I would walk on hot coals for this child so it's all good."  And truly...all it takes to get some perspective is to walk the halls at Boston Children's and see parents with dying children.  I am so grateful for the doctors we have.  Our family doctor called me Sunday afternoon to make sure SaraGrace was okay--they had discovered she had strep after a test was done.  Then last evening, Jordan's doctor called because he had just returned from vacation and wanted to make sure Jordan's skin had cleared up.  Our kids' doctors are so dedicated...it's such a blessing!

9 comments:

Kim K. said...

Glad for good appointments, even though you are far from over with upcoming appts. I'm sorry she's still struggling with night terrors. Josie still has them, but they aren't every week. Bless their precious hearts.

Angie said...

What a blessing to have drs. that call to check on your kids. As far as "normal" goes, that's WAY above and beyond! Praise God their hearts are doing well.

Tesseraemum said...

Sweet girls!
My Olivia had night terrors for quite awhile. She is the one with adhd and sensory processing issues. The dr began to address anxiety and low and behold they stopped. That was the LAST thing I thought was on the radar considering how bubbly and happy she is!Anxiety issues were the one thing I couldn't imagine but I guess it manifests in different ways. Might be something to ask about. Sheri

Kimberlie said...

I am glad that the girls' hearts are doing well. Praise God! As for the night terrors, well that just stinks for your sweet girl. Seth (my second oldest boy) STILL head bangs on his mattress at night. He's not entirely awake when he does it and sometimes will off and on for hours in the middle of the night. We've tried many things to help him. Nothing so far has helped and he's old enough now that he can articulate what we've always known - he's perpetually tired during the day. Hope the sleep study will help with SaraGrace!

Jean said...

What wonderful Drs you have!!

Thankful they are all doing well!

God Bless SaraGrace- I would be afraid to go to bed too- if I always had bad dreams.

So what ages are your kiddos?

strat said...

You are sweet. Im sure you will get better.
cremation phoenix

Sharon said...

I'm so glad to hear their little hearts are functioning well, and you definitely do have the best doctors. I hope you will find out soon what the problems are with SaraGrace's lack of growing. She is so special to us! We will be praying.

Difference2This1 said...

I've peeked at your blog over the years here and there...you have such an amazing family :) Just wanted to share..my Raegan had violent night terrors that began when we brought her home. It took us until she was about 5 yrs to figure out that dairy proteins cause them. Once we cut out dairy- they stopped (she is not allergic). When she has a good amount of dairy - she has them again for several nights...they say it takes 24-36 hrs for milk proteins to impact your system if they are going to..and 5-6 days for them to clear your system. A couple years ago a woman at the health food store I visited mentioned that her high school son and her have that same problem so they never eat dairy anymore. My Robyn has had bad dreams/night terrors/sleep walking several times a night for years. It turns out she has an allergy to mold (the allergist said allergic reactions can cause night terrors). Most nights antihistimines help her sleep...but after rainy days she cries in her sleep off and on all night and sleep walks all over the place. Anyway...such oddball things that caused years of bad nights for our family...wanted to share just in case it gave you other clues to look for causes there. Blessings, Jennifer

David and Janet Hurley said...

Glad the appts went well. We're having the 1/2 day test with blood draws every 30 min. at the endocrinologist next week. Wes hasn't grown in the 2 years we've had him. He has been treated for hypothyroidism the whole 2 years. His bone scan a few weeks ago says he's 6....he is supposed to be 8 next month. Keep us posted.