After getting a lung scan, it has been noted that SaraGrace's artery is now pumping twice the amount of blood into her lung that it was prior to receiving the stent! WOOHOO!! The veins and vessels in that lung are much smaller because they have not been receiving the blood they were supposed to have been getting. However, they are expected to grow now that they are getting more blood. In time, it is hoped that the 32% blood flow will increase (Normal is 45. She was at 19 before the stent was put in). The biggest and most awesome news is: she might not have to have open heart surgery when she needs her valve replaced!! If her current one holds out long enough, there is new technology that enables them to replace a valve using a cardiac catheter!! I had read that they were starting to use this for adults but not yet for children. Apparently, they have now developed a valve that can be used for some kids if they are big enough. The cardiologist said he can't promise it for SaraGrace, but she is definitely a candidate! Such amazing news as we had always been told she would need two more open heart surgeries to replace her valve as she grows. The technology for heart defects is improving at such speed. I have hope that Kate will be able to benefit as well.
She is quite anxious to get out of here and get the IV out of her hand. It's itching and driving her nuts. Thank goodness for Disney princess movies to distract her or I think we would both be a little nutty by now. The meals in bed didn't have the same luster as they did prior to experiencing them. Smile.
We both slept fine last night--thanks to being able to have a private room (another WOOHOO!). We are on a cardiac floor so most of the patients are tiny babies who don't necessarily know the difference between day and night.
A snowstorm is headed our way and school was canceled for Taylor who can now babysit when the girls are dismissed at noon. That made life much easier as Jeff was trying to figure out how to come and get us and juggle the kids. A friend was going to help out but now Taylor can handle things.
First wheel chair ride--and she had the energy to flash a smile for the camera.
The nurse just came in with the golden discharge papers, so we are busting out of here as soon as Jeff gets here. YAY!
Oh and thank you for the birthday wishes from some of you...yes, today is my birthday and I'm now on the downward slope toward 50. hahahahahahaha
