Tuesday, September 28, 2010

Results from Jordan's Doctor Visit and MRI

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Jordan had his visit with the ear doctor last week. The results were not what we had been hoping for.

After his hearing test, we had been excited to learn that he had a working cochlea and hoped he would be able to have reconstructive surgery to build an ear canal.

That is not to be.

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The place where his ear canal should be is totally blocked by bone and the nerve that conducts sound is running through it. It's hard to explain, but basically, there are several factors that make it impossible to do any type of reconstructive surgery or open the area where his ear should be.

It IS possible at a later date to implant a B.A.H.A hearing device to help him pick up some sound. We need to talk to them more about this possibility.

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He has two options for his outer ear. One, he can have a prosthetic, which can be done in one surgery (they implant magnets to hold the ear on). Because it is 'cosmetic' the prosthetic is not covered by insurance. Lovely.

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His other option is to have multiple surgeries where they take cartilage from his ribs and slowly build an ear. This is totally covered by insurance because it is surgery. It is much riskier and obviously, multiple surgeries is no fun.

We have an appointment this Friday afternoon with the plastic surgeon to discuss the options.

Jordan was disappointed--we are all disappointed. However, we are very grateful that his other ear is perfect and he hears well in most situations. He is anxious to get his prosthetic ear because he is getting very self-conscious about the stares he gets. Normally, they do not do an ear prosthetic before a child is age seven though.

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God is good and He will help Jordan deal with whatever he needs to face. We are just thankful for modern medicine that will eventually give Jordan an ear that looks just like his other one.

8 comments:

Lori said...

Oh no...I'm so sorry. That just breaks my heart for him. I hope you can get some good information on where to go from here to quickly bring a resolution for that sweet boy!

Bless his heart!

Oh and interesting that insurance will cover MULTIPLE surgeries...but not the ONE for a prosthetic? Yeah, makes a lot of sense. Go figure.

Kimberlie said...

Oh, that's so disappointing! I will pray for Jordan. It is tough for a child thinking they are "different" and all they want to do is fit in and be "normal." It will be AGES before any of our kids realize everyone has their "stuff" that makes them different, it's just that some are more noticeable than others.

Praying for an awesome plastic surgeon and the right direction. :)

James, Dawn and Family said...

Insurance cracks me up. We've dealt with some little things. We'll keep you all in our prayers.

Kim K. said...

Your kiddos are always in my prayers. Extra hugs this evening.

Tesseraemum said...

Sweet Boy. Tell him people are staring at him because he is just so handsome they just haven't seen anything like it before! Sheri

Kristin Ferguson said...

I'm sorry to hear this news but also glad that there are some alternative solutions. Jodi on "Finding Artiom" blog has a son who will be getting a B.A.H.A. as well in case you want to talk to her.

Praying for sweet Jordan!

Penny said...

Starla Fick at Crossroads has a BAHA and she loves it.

Kim said...

Karen,
I have been following your blog since Kate had her surgery. I don't comment often, but I wanted to comment on this topic. We adopted a our daughter at 7yrs of age(now age10) from China. She has Microtia and Artresia, and she had the reconstructive surgery. It is amazing! We would be glad to share our experience (and even pictures of the surgery stages if you would like)... you can email me at bandksmith@yahoo.com. We chronicled some of the surgery steps on our blog as well...fivechilipeppers.blogspot.com