Our little Jordan has microtia, a condition where a child is born missing the outer portion of the ear. It can affect one ear or both. Jordan has one ear affected.
He will eventually get a prosthetic, but our ENT in Michigan told us that it would not happen until age 7. This is due to wanting to wait until the child is old enough to only have to do one prosthetic.
He is five now and has been asking quite often when he will get his 'new ear.' Bless his heart. I decided to start the process and see if the answer would be the same at Boston Children's.
I took him today for the first stage...a hearing test. We had been told in Michigan that it was very unlikely that Jordan could hear out of his affected ear.
But today...drum roll...he CAN hear out of that ear!! His cochlea is working PERFECTLY! He still does not hear out of that ear, though, because there is not an open ear canal.
His next step is probably a cat scan to see if he has an ear canal. The doctor he needs to see has a waiting list until Sept. We are on a cancellation list, though, so maybe we will get in sooner.
We are so excited for him!! He was grinning from ear to ear when I told him. I don't think he fully understood, but he new it was good news.
