Friday, March 23, 2012

The Big Reveal

Jordan is doing great! I am so proud of him. He has not complained ONCE about having to wear his padded helmet. He hasn't needed any pain medicine since Sunday.

Yesterday we went to Shriners because Zoey is getting another new leg. Her second one has never fit quite right and they decided to just make her a new one. It was pretty comical when we walked in. The receptionist looked at us--Jordan with his head wrap--Zoey with her prosthetic leg--and said, "Which one of them has an appointment?"

I forgot to take my camera (gasp!) but took a few photos at her last visit before Jordan's surgery.


The inside of the leg...

Getting the leg length correct as well as standing on it long enough to make sure it feels right.

She happily shows off the baseball cards she got. She chose them over stickers at the end of her appointment.

Today we went to Boston for a post-op appointment for Jordan. We were excited to be able to see his ear!! The doctor warned us that it would look a lot bigger than normal because it is still swollen. I expected it to look a lot worse than it did.

BEFORE surgery:

So ready to get rid of those hanging drains!

Anticipation...

More anticipation...

And there it is! The next surgery will be to make a lobe out of what Jordan already had and connect it to his new ear. I'm kinda diggin' the cute little buzz cut around his ear. :)
Getting the drains removed. He sat so still and never made a peep--although winced when some of the stitches came out. He has some sutures that will stay in for at least 4 weeks but the sutures that held the drains in place came out today.


Getting his first look in the mirror. That smile almost makes me cry. He told me later that he was a bit disappointed in how it looked because it was so big. I explained to him that it wouldn't always look that big--the swelling will come down and the ear will get smaller.

The ear is under the skin on the side of his head. The skin will eventually stretch enough that it will conform to the new ear and become the skin that covers it just like yours and mine. Amazing, huh? And the cartilage that they used will actually GROW with him so that his ears will stay equal size.

He had quite an audience in his tiny exam room. There were seven adults besides me all watching the big reveal.

His doctor takes pictures to help him get the correct symmetry for subsequent surgeries.

His third and final surgery will bring the ear out so that it sticks out the same as the other ear.
But doesn't he look cute?! :)

His head got a short breather and then it was back into another helmet. He will get a new one every Friday for the next few weeks. I was so proud of him. He didn't complain or whine...just sat there and let them do their work.
There go the bandages...
And more bandages....yet he retains his good attitude!

And on top of it all, this funky looking cheesecloth kinda thingy. They had to tear out the front to let his face peek out.

Then we went for a walk because we had a bit of time to kill before we had to pick up the kids from school. Harvard Medical School is right next to Children's Hospital so we walked over there. Jordan says he wants to be a doctor--and I think he would make a great one! I had him pose for a picture in front of the main building.

And I think all that good behavior deserved a reward....so a Harvard Medical School t-shirt did the trick. Plus, they were on sale...Score!

A little hold-out-the-camera-and-take-your-own-picture-to remember-the-day moment. We are so thankful to live near such amazing doctors and facilities. God knew what He was doing when He moved us here--despite our great reluctance to live so far from family.

21 comments:

Lori said...

Oh wow, that last pic is ADORABLE!!! Your haircut is absolutely darling.

And my gracious, J's ear looks amazing. AMAZING! Wow, what talented doctors. And what a super great patient!

LOVE LOVE LOVE the pic of him in front of Harvard. I have a feeling that will be framed and hanging next to his medical diploma someday! :)

Kim Pedroza said...

Awww!!! Brought tears - sweet tears. And my kids were excited for Jordan too. He is such a sweetheart! Not many kids could undergo what he has and still have such an amazing smile! Love and miss you guys!

Kim K. said...

I'm wiping away tears. Jordan is such a brave young man. What an amazing journey awaits him. Beautiful pictures, Karin.

Angie said...

That is just nothing short of amazing! You go for it, Jordan! You'd be a great doctor! Look out Harvard!

Jean said...

I love his ear! It's adorable!!

He is such a trooper and has such a great attitude!

4D said...

We are parents to a 2 year old boy with Microtia/Atresia. We have been a family since December and I came upon your blog via No Hands But Ours. We are in the preliminary stages of doctors appointment with our ENT. Your blog is wonderful and thank you so much for sharing your sons journey. It gives us an idea of what amazing things can happen.

Keep smilin!

Jennifer P said...

What an amazing reveal. Thanks for sharing it. All things are possible with God! And a few very skilled doctors. We are headed to Boston ourselves in a few weeks for a second opinion. Jordon looks great. Does that mean no hairwashing for 4 weeks?

Anne Devlin said...

Awww! What a sweet boy - and the ear looks AMAZING!!!

Valerie and Jeff said...

Simply AMAZING! His new ear is quite handsome that is for sure ... and why wouldn't it be since no doubt they formed it in comparison to his other one. I'm just in awe of his strength to go through all of this with such patience and braveness. One ear or two, he is one heck of a guy! So glad you are sharing this especially for people considering or are dealing with this SN--so beautiful to see the smile on his face with the big reveal.
Blessings--Valerie

Chris said...

That is amazing!You can already tell how much the ear will look like the other one.
Too bad about Zoe needing a new leg already...did they ever talk about bone overgrowth for her? Joe will need surgery for that in the next 2 weeks.

Sharon said...

It is just so amazing what can be done now days. Jordan is such a handsome little guy and has such a sweetheart of a personality. Also, have to say I love your hair back to the way it used to be in Michigan. In my opinion, it's just the perfect style for your face.

Doms mom said...

Thanks so much for sharing your lives like you do. So inspiring and beautiful. Love Jordan's smile and how cool he's aspiring to be a doc. That pics you have of him at Harvard and with the T-shirt will come in handy when he graduates from Med school and you display these pics at his graduation party :).

Trish said...

Ohhh sweet boy, he was so brave! Trish (Dawns N. friend)

Kristin Ferguson said...

Jordan really is a trooper and you my friend, are stylin' a really cute doo!I too can see him being a doctor someday! Thank God you see the wisdom in moving to the Boston area although I know leaving family is very, very difficult!I've been a terrible blog friend lately but i did send you an e-mail a week or so ago...did you get it?

Theanne said...

Hey Jordan, you're incredible and your "new" ear looks fantastic! That is one great Doc who "created" your new ear...when he's done it's going to be pretty close to perfect! Maybe it will be perfect! ;-) I agree with your Mom I think you'd be a wonderful doctor...love the T-shirt!

Say hi to your sister for me...happy she's getting a new leg...hopefully it will fit better!

Gretchen said...

I can not believe how big the kids are getting!

How handsome is Jordan?!?!?!

You are defintiley one blessed Momma!! Miss you, friend!

Jo's Corner said...

Your little ones are so Cool! They have such sweet spirits and endurance that you don't always see in children. Jordan's ear looks great. I was amazed at how he sat so still and let them do what needed to be done. I'm sure he's happy to have those drains removed. You, too! Did you have to do the "strip" thing? Well, that's probably a silly question. They have to be done. So, YOU are the one who is glad they are gone!! I had 3 on each side after my double mastectomy. That was a trip! And, that's when we discovered I had a Latex/Silicone allergy. I was on IV antibiotics for 6 weeks. That meant a trip to the Infusion Clinic, 3X a day, 7 days a week, for 6 weeks. And, I had to drive myself. That meant lifting a wheelchair into my car (behind the drivers seat) and then hopping 2 "hops" to get in the car to drive...with SIX drains, (sometimes swingin' drains!). All of that, to say that I totally relate to your kids!! : ) Zoey and her leg and J with his drains. I must admit that I felt a bit embarrassed when I saw how tough J-Man was! You are a good Mama and you're doing a great job with your Loves! Oh, and I love that photo of You & J, too! Cute hair!! Hugs to All!

Stefanie said...

Wow! I can only imagine how happy you were to see Jordan's smile when seeing his new ear :)

Thank you for sharing this journey with all of us, it truly is incredible!

Jennipher said...

Jordan! You are so courageous and kind...congratulations buddy! Sending so much love your way.

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